A national research database for personal health data
A multidisciplinary team of researchers is building a research database for personal health data in Germany: NFDI4Health.The project is funded by the Federal Government and the Länder and coordinated by the German Research Foundation, initially for five years. The IGMR participates in the project as a partner.
Access to detailed information on a large and unselected number of patients is pivotal to advance patient stratification, to support personalized medicine, find new therapy options and to improve patient care. In Germany, there exist a high number of different health data resources such as clinical, epidemiological or public health studies distributed over various research institutions and public authorities.
Access to and use of this data is restricted by data protection laws due to the legitimate interests of the study subjects. Besides these important restrictions, access to research data is still hampered mainly by missing interoperability of data types, poor data linkage opportunities, and the lack of protected data sharing environments and settings, which would allow automatic access to data.
In the interest of improving population health through better and broader data re-use in Germany, NFDI4Health maps out a national research strategy focusing on personal health data.